We first met Jen when she did a feature on our son, Sam. Her ability to tell the story of a young boy who was born with a rare syndrome and has cognitive and physical challenges, was so moving. She told a story that is usually hard to explain, hard to get people to connect. Jen did this with heart, warmth and a genuine spirit. This was the reason I asked her to do another video about the foundation that supports 1,500 other children around the globe with Phelan-McDermid Syndrome, a rare genetic disease. Our story is difficult to get across to people who do not understand lifelong disability. Jenesis Creative did a wonderful job of telling the story so it made an impact. The video helped raise over $200,000 in 24 hours! We use this video as a way to encourage, inspire and advocate for children with challenges. We continue to use this video to raise awareness all around the world.
President, Phelan-McDermid Syndrome Foundation